I shared this post a couple years ago and this is still my heart today!
the other evening after tucking the boys into bed, steve came downstairs and said, ‘i just had the most surreal experience. i was telling david to lay down and kissing him good-night and as i looked at him i saw a nine year old boy–no disability. just david. it was like our souls had a connection.’
as soon as he described the interaction the tears began to roll down my cheeks. i knew exactly what he meant–there are times, small moments, when i see beyond david’s disability and into his soul. and i see a little boy stuck in a body that won’t cooperate with him. i see him wanting to speak words and unable to get them out. i see him wanting to tell me something, to ask for something or describe something but there is a chasm between us and it’s too wide to cross.
and sometimes in those moments i let myself dip my toe into the dark, scary pool of what if? what if david wasn’t born with a disability? what if he had ten fingers? what if he could munch on a hamburger and fries at mcdonald’s and begged to play just one more game on the ipad? what if he could imagine stories and tell me all about them and illustrate his ideas on leftover sheets of computer paper?
the truth about ‘what if?’ is, it doesn’t exist.
the truth is, i will never know ‘what if?’
the truth is, david was born with a disability. he has seven fingers instead of ten and he can’t speak words or express complex thoughts. he is a soul stuck in a broken body.
and the truth is, time spent thinking about ‘what if?’ is time wasted.
today i choose to focus on what is. today is a new day with joy waiting to be discovered. today is a new day with mercies waiting to be uncovered. today i am grateful for what is. grateful for an eleven year old who is healthy and silly. a little boy who is curious and loves to explore and learn new things. grateful for my sweet son who loves to cuddle and kiss and be tickled.
what is, is beautiful.
For David, for hope–go find our more about the ‘tied to my heart’ necklace here!