Lisa Leonard Designs

david update

September 28th | david

So many of you care about our sweet David–and I can’t begin to tell you how much it means to me!

I told you we visited David’s pulmonologist at UCLA on Monday and the appointment went well. Later we got the results of David’s sinus x-rays and found out that he has some pretty serious sinus swelling and infection and also a large cyst above his left eye. He’s been congested for the last 8 weeks, so while we are relieved to be getting answers, we were so bummed to hear that there is a more serious problem.

In the next few weeks we’ll be doing an intense four week course of antibotics and we are using a new nasal spray to help with congestion. In a month or so, we’ll reassess with the doctors and decide if surgery is needed.

I was super sad for a day and cried a lot, but now I’m pulling it together and moving forward. David is a trooper. Even with his congestion and headaches he is happy and playful and living life to the fullest. There is so much to be thankful for and I don’t want to waste time feeling sad or angry. So I’m taking a cue from David and I’m living in the moment. I’m letting it be imperfect but beautiful at the same time.

This weekend we are celebrating Steve’s birthday {happy birthday sweetheart!} and relaxing a bit. What are your weekend plans?

48 Responses

  1. Southern Gal says:

    Praying the antibiotics will work for David.
    Happy Birthday to Steve!

    Nothing planned for this weekend. Hallelujah!

  2. Cait says:

    Happy birthday, Steve! I hope you all have a wonderful weekend of celebration. You’re in my prayers!

  3. Praying for you and David! Oh how I loved these pictures of him!!!

    I am waiting for my husband to get himself home from California! Soccer games, church potluck, and cooking are on my agenda for the weekend.

  4. Linda says:

    Happy Birthday Steve! So sorry to hear about little David. My son has CF and sinus issues go with it. He had sinus surgery and it really made a big difference for him. He does saline rinses every day which are great but not sure if you could do that for David. Will keep you in good thought and prayers.

  5. FringeGirl says:

    Happy Birthday to your hubby.

    I’ll keep David in my prayers and pray that he will not need surgery. Poor kid. He is certainly a trooper.

  6. Sarah S says:

    You are a great mom and a great person – I really admire your spirit.
    -Sarah S

  7. Mandy says:

    Aww, precious little David! Keeping him in my prayers along with you and the rest of your family. It’s so hard to see our kids hurt. Thanks for sharing little bits of him with us, Lisa. I love following along with your journey.

  8. Thank you for reminding me to live in the moment too. You are such a blessing to my heart. Prayers for sweet David and you today.

  9. David’s sweet personality shines through these pictures….. He is just precious! Living in the moment is so important. It really helps make life fulfilling.

  10. I’m so sorry about the sinus issues. They can be awful. Our children have had issues over and over again and both had surgery for them on the same day. I hope that with these antibiotics and nasal spray that he won’t have to go through that. Hope you have a great weekend celebrating Steve’s Birthday, xoxo

  11. Melanie says:

    Praying for all of you. I just love that sweet boy so much… Is that strange from a stranger? 😉 I have two boys too and this “mama heart” of mine hurts for you with the news of the cyst. Praying a special prayer of peace and strength for you right now…. because we’re all imperfect, and this is beautiful.


  12. Vickie says:

    I work with a dear friend junking and painting/repurposing old furniture. We like to say that our “junk” is imperfectly perfect. And really, aren’t we all?

    Blessings to all you all!

  13. jennifer Camplin says:

    Thoughts and prayers are with your family from out hearts. see if med works for the best..

    enjoy Birthday weekend!!
    happy Friday!!

  14. shelly says:

    …hoping David feels setter soon.
    i love the photos you post of him (i think maybe i see on instragram?) he is always so happy and has the most adorable smiles! – it always brightens my day! i think we could all learn from him and live in the moment – thanks for sharing Lisa!

  15. Jennifer Fletcher says:

    Everytime I see a picture of David, I smile! He is precious and you are blessed to have him. I think he’s the perfect gift of love to you from God.

    Bless you and your family this weekend.. Isn’t fall a wonderful time to enjoy…this more gentle time..beautiful sunrises and sunsets. a stillness in the air and the fall colours. My favourite. I marvel in his beauty!

    Thanks for sharing David and the rest of your family with us.

  16. Beverly says:

    Keeping David and you in my thoughts and prayers.

  17. LOVD says:

    Sweet blessings to you and your family, Lisa!

  18. missy says:

    ….he is beyond precious – created in the Lord for the Lord. Praying david’s strength in the Lord spills out and splashes all over you today. Hang in there, friend. Praying for you and yours….

  19. saying prayers for you all and hoping the meds will do the trick! ((())) hugs to all!

  20. Melana says:

    Thoughts with you and yours over the next several weeks! Your David makes me stop in my tracks and take a moment to be in awe of your family’s strength.

  21. Clarissa says:

    I will lift up David and your family in prayer. God Bless all of you.

  22. Arijaan says:

    Aw, David. Praying for you all. . .and Happy Birthday, Steve!

  23. Kaye says:

    Many prayers for David, and Happy Birthday to Steve! You have such a beautiful family! I’m going to visit my middle son this weekend. He’s away at college and we haven’t seen him since mid-August. I miss him.

  24. debbie says:

    Praying for your sweet little boy,, I love reading your blog. We could all take a cue from David and live like that.. at least I know I could.
    We’ll be celebrating the first granddaughters first birthday this weekend. Hoping it doesnt rain.

    Have a great weekend.

  25. Shelah says:

    I will keep David and your family in my thoughts and prayers. He is such an amazing young man and an inspiration to us all!

    Happy Birthday to your hubby too!

  26. Lisa says:

    Bless his heart…What a strong, little guy. Hang in thee mama.

  27. Debbie says:

    Sending prayers for David
    Hope Steve’s bday is great and your weekend is wonderful

  28. Maribel Reyes says:

    I am always amazed how strong children are, I feel that I learn a lot and have grown emotionally since having children. We will definitely keep David and your family in our prayers.

  29. joanie says:

    Love you, Lisa! We’ll be praying! Happy Birthday to Steve!

  30. Nikki says:

    Hi Lisa,
    I rarely comment, but I am a daily reader. I can’t even begin to say how I admire your attitude in dealing with David’s troubles. I can certainly learn to spend less time being sad and angry and instead embrace the challenges that life throws our way. I have had a recent diagnosis myself that has been life-altering and your reminder today to mourn when you need to, but then move forward, is so powerful! I wish the very best for you and your sweet family.

  31. Sending warm, healing, positive and happy thoughts David’s way…Take care. Happy Birthday to your husband!

  32. Kelly says:

    Wishing a peaceful and fun birthday weekend for your whole family. I too admire your strength and spirit, and hope the antibiotics work hard for sweet David!

  33. Sheila says:

    So sad that David is feeling crummy, prayers from MN that he will feel better soon! Happy Birthday Steve, you sound like a great husband and dad! Our weekend plans are icky. My mother-in-law passed away yesterday, so we will be making arrangements for the funeral. On the good side of that though, my sister-in-law and kids are flying in from Germany tonight. They are staying at my house, which is small and not kid-proof (since my kids are grown) and they will be here for a month! It will be interesting to have 4 adults, 2 kids, a dog, cat and rabbit in a house with one bathroom, but I am so excited to see them! My daughter spent the summer with them as a nanny, and I am jealous that she gets to spend so much time with them. Now it’s my turn. Gotta go get my “kssin’ lips” ready for those babies! Blessings to your family.

  34. Laura says:

    So glad you got some answers! Praying the antibiotics work. Hope you have a great weekend!

  35. Kelli says:

    Thinking about you and your family and hoping you enjoy the weekend. I love that you let yourself be present and grieve and move forward to embrace what is with such grace. xo

  36. liz r. says:

    I hope the treatment works for David–and happy birthday to Steve! Hoping for a restful weekend for you.

  37. Paige says:

    Prayers for sweet, playful David. He should teach all of us a lesson. Hugs to you and your family. Happy Birthday to Steve!

  38. Marie M. says:

    You, David, and your entire family are in my heart and thoughts. Enjoy the birthday weekend!

  39. Joanna says:

    Praying for David, you, and your family!

  40. Ronni Keller says:

    Hello, I have a daughter 29 years old with Cornelia DeLange Syndrome. My sister was looking on the web and came across your son’s photo’s. They could pass for close relatives.

    I too have battled the ENT,Cardiologist,GI is the most sever for my daughter Erica.

    I pray for you and your family. Keeping busy and in high spirits is the best way to tackle any down fall.

    It looks like you have a great support system. That will help.

    Hang in there and best wishes. You are a great Mom. Dad too!

    • Lisa Leonard says:

      Thank you Ronni! It’s wonderful to connect with other families with CdLS. We need to support each other. Sending hugs to you and Erica!! xoxo

  41. Dawn says:

    Praying for David, the family and the doctors. My middle daughter has a chronic sinus infection that has plagued her for years. The symptoms were consistent- every 8 weeks a nasty infection for about three years. We met a wonderful doctor that told us some very similar things, her sinuses were horribly infected. In fact the doctor feels the three years have been marked by ONE sinus infection that was never fully treated and just invaded every sinus cavity. While he felt surgery was deinately on the horizon, we tried a three week course of STRONG antibiotics combined with steroids hoping and praying the infection away. It worked! She still gets sinus infections, but we have a standard attack now. God is able- he did it in our family, He has done so much in yours. I can’t wait to see Hishand at work again in your David!

  42. Kim T. says:

    Prayers to you and your family for sweet David! I do hope he gets better soon. If you are able, try to remember to give him probiotics while his is on the antibiotics ..and for a while after.. to try to replenish the good flora that is also getting wiped out. It will help to keep him from feeling nauseous, also. praying for strength for you as well. :)

  43. Becky Jones says:

    Am a distant relative of Sue Donaldson and just took a chance and came from her website to yours and found your delightful David gracing your blog. We live in TN; lived in CA for 20 years and had to come to our mountains that are just lovely in the fall of the year.
    You are handling the doctor’s visit with grace and a flourish. May God be with you and your family. It is bad when kids are born hurting but we have to take it as a blessing and live for God.

  44. Sandra says:

    Praying for you David!
    Get well lil buddy and stay strong!!!

  45. I just went through and read all your posted tagged ‘David’& I was so blessed to read those words. Your transparency, heart for your son, & determination to press on toward hope, trust, joy & faith were both inspiring & encouraging to me. It makes me appreciate what I have with my son even more. What a precious joy it is to receive love from a child. What GRACE it is to us. We are privileged.

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